Patient involvement

Leader: Professor John Kirwan, with Mrs Edith Anderson and Ms Pam Richards

Overall aims

To ensure Bristol Bones and Joints Health Integration Team’s developments are based on patient priorities and concerns, and people with musculoskeletal conditions are able to contribute their opinions and advice to the developing projects and activities, and their evaluation.

Our group has collaborated with patient partners for many years. Both rheumatology and orthopaedics have formalised the roles of patients in research and service set-up. For example at University Hospitals Bristol (UH Bristol) every research project has had two patient research partners on the study steering group since 2005, and many are co-authors on papers and co-applicants on grants.

At North Bristol Trust (NBT), the PEP-R involvement group has been active since 2010 and has been featured in publications by the NHS INVOLVE group. Both UH Bristol and NBT have patient panels to review project proposals, and UH Bristol’s clinical rheumatology service has an active patient advisory group (PAG) to support service delivery.

The combined Universities of Bristol and the West of England rheumatology research and clinical team based at UH Bristol won the 2012 University of Bristol Public Engagement award.

Projects and activities

We run an annual public and patient involvement (PPI) day to inform and help steer the HIT’s work:

December 2012

Download the December 2012 PPI day report (PDF).

April 2014

People with rheumatoid or osteoarthritis discussed patient involvement, self-management and research priorities. This informed a research proposal to examine the training of clinicians in skills to support self-management.

Download the 2014 PPI report (PDF).

June 2015

People with osteoarthritis, osteoporosis and inflammatory arthritis advised us on ways to support self-management, and how to increase patient involvement in teaching care and research.

We now plan to review and streamline our PPI support systems and our recruitment materials. The delegates also tested the first draft of our musculoskeletal webpages (see the informatics theme) and advised on refinements.

Download the 2015 PPI report (PDF).