The Stroke HIT has five workstreams:
Service Users Group
The Group brings together people with direct experience of stroke and stroke services in Bristol, North Somerset and South Gloucestershire, with representatives from Healthwatch and stroke charities (Stroke Association/Bristol After Stroke) to provide advice and assist with the co-design of stroke research and service evaluation projects as directed by the Stroke HIT.
Having a formal structure which directly links the Stroke HIT and the BNSSG Stroke Programme Board also provides a means for stroke affected people to have their voices heard by senior decision makers within the health and social care system and comment on and influence, the design of stroke services and quality outcomes, along with offering insight into the effectiveness of stroke focused education and training provision.
Lead: Claire Angell, stroke survivor
Education, training and skills
To ensure that healthcare professionals and support workers working in the Bristol North Somerset and South Gloucestershire (BNSSG) locality in health and social care with people affected by stroke have access to contemporary holistic stroke education.
Lead: Claire Fullbrook-Scanlon, Senior Lecturer, University of the West of England and Consultant Stroke Nurse, Royal United Hospital Bath NHS Foundation Trust
Innovation, Evaluation and Research Group
This recently established Group operates to reduce the impact of stroke by supporting the identification, development and delivery of research and innovation projects. The HIT supports collaborative research, is guided by local stroke survivors and the public, and is relevant to local health and social care services.
Lead: Stephen Hill, stroke survivor
Stroke prevention: reducing risk for people who have sickle cell disease
In this short video, Stroke HIT public contributor Evelyn Schiller outlines why it’s important to preventing stroke in people with sickle cell disorder.
The Stroke HIT is currently working with Evelyn, healthcare professionals specialising in sickle cell disease, and the education sector in Bristol to devise a plan for raising awareness of sickle cell disease and stroke in schools.
Aphasia (difficulty with language or speech) projects
We work with several organisations and individuals with an interest in aphasia research and supporting those who have aphasia.
- Our collaboration with stroke charities continued with our work with Rosetta Life to develop films about stroke recovery that will be used to illustrate issues around stroke rehabilitation and visual impairment. As part of our work promoting life after stroke, we supported Rosetta Life in delivering Stroke Odysseys, a performing arts intervention for people after stroke, in Bristol. Stroke HIT and APPHLE HIT supported the Stroke Odysseys project which included having representatives on the project steering group and helped Rosetta Life make connections with relevant people and organisations. The HITs also provided some monetary support to the project. The project is a really good example of successful collaboration across organisations. The project team worked with North Bristol NHS Trust’s Southmead Hospital, Southmead Development Trust and Bristol After Stroke to secure a practice space at Southmead and participants from Bristol After Stroke. Lerato Dunn from Bristol City Council provided advice and funding for the project. Unfortunately due to the COVID-19 pandemic, some of the performances in 2020 were not able to go ahead as planned. However, the Bristol group have put on an online opera and started a cabaret style live streamed event.
- Voices of Aphasia – aphasia choirs in South Gloucestershire and Bath
- Aphasia research volunteer opportunities available – new online research project called VESFA is exploring therapy delivered remotely via an online virtual reality world called EVA Park. If interested, contact Niamh Devane at Niamh.firstname.lastname@example.org Recruiting until Autumn 2021